Office for Rare Conditions Glasgow

The Office for Rare Conditions Glasgow is located in Child Health, and works on putting the patient to the forefront, providing information and support to all affected by rare and undiagnosed conditions.

Key Objectives are

  • Raising awareness and knowledge of rare conditions
  • Enhancing support available to children, adults and their families / carers
  • Promoting standards of clinical care for people with rare conditions
  • Increasing the participation of people with rare conditions in multi-centre research

 

                                                                                                                                                  Updated 15 12 2023

 

Staff

Dr Martina Rodie  Project Lead

Professor S Faisal Ahmed  Samson Gemmell Chair of Child Health

Elizabeth Dougan Project Manager

Claire Dinning   Patient Navigator