Dr Maria Truesdale
- Senior Lecturer of Intellectual Disabilities (Mental Health & Wellbeing)
https://orcid.org/0000-0003-3081-7858Biography
Dr Maria Truesdale was a researcher in the field of intellectual disabilites at Ulster Universtiy in Northern Ireland since 2000 and then moved to Scotland in 2016 where she took up the post of lecturer in intellectual disabilites at Edinburgh Napier University. Maria joined the University of Glasgow in 2019 as a senior lecturer in intellectual disabilities. Maria's multi-disciplinary and internationally recognised programme of research focuses on tackling the health inequalities faaced by people with intellectual disabilities. Maria is currently the Solution Focused Research Theme Lead for the Scottish Learning Disabilities Observatory. Her goal is to improve the physical and mental health and wellbeing of people with intellectual disabilities and thier carers through the evaluation, development and testing of complex interventions using gold standard methodology and inclusive research.
Maria has conducted a number of trials using complex interventions in physical and mental health for people with intellectual disabilities and has played a central part in the development of a randomised control trial of the clinical and cost-effectiveness of the DESMOND-ID structured education programme for adults with intellectual disabilities and type 2 diabetes. This multi-site study is the largest funded trial internationally of a health behaviour intervention for people with an intellectual disability.
Dr Truesdale supports the teaching and delivery of the PGT Positive Behaviour Support programme and contributes to the supervision of MVLS Postgraduate courses, namely MSc in Global Mental Health and MSc in Public Health. She is also the Mental Health and Well-being co-lead for Early Career Researchers.
Recent and current projects have been funded by NIHR, ESRC (UK Research and Innovation) and The Burdett Trust for Nursing.
Research interests
Maria's research interests include intellectual disabilities, chronic health conditions (e.g. type 2 diabetes, respiratory disease, cancer), family carers and feasibility studies and clinical trials.
Awards
2022 MVLS Engagement Award: Responding to COVID-19. Self-help COVID booklets for people with learning disabilities.
Editorial boards
2019-present: Journal of Applied Research in Intellectual Disabilities (Associate editor)
Publications
2024
Tawankanjanachot, N., Melville, C. , Truesdale, M. and Kidd, L. (2024) An online survey of perspectives towards the impact of the covid-19 pandemic amongst caregivers of adolescents with ASD. BMC Nursing, 23(1), 830. (doi: 10.1186/s12912-024-02492-w) (PMID:39543635)
Linden, M., Truesdale, M. , Leonard, R. A., Brown, M., Marsh, L., Todd, S., Hughes, N. and Forbes, T. (2024) Acceptability testing of the Carers-ID intervention to support the mental health of family carers of people with profound and multiple intellectual disabilities. PLoS ONE, 19(10), e0313081. (doi: 10.1371/journal.pone.0313081) (PMID:39480903)
Brown, M., Linden, M., Marsh, L., Truesdale, M. , Sheerin, F. and McCormick, F. (2024) Learning for life, friendships and relationships from the perspective of children and young people with intellectual disabilities: findings from a UK wide qualitative study. BMC Public Health, 24(1), 2491. (doi: 10.1186/s12889-024-19972-y) (PMID:39267029)
Ward, L. M. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland: a retrospective cohort study with record linkage. BMJ Open, 14(8), e084421. (doi: 10.1136/bmjopen-2024-084421) (PMID:39142671) (PMCID:PMC11331995)
Leonard, R., Hughes, N., Forbes, T., Brown, M., Marsh, L., Truesdale, M. , Todd, S. and Linden, M. (2024) Effectiveness of online programmes for family carers of people with intellectual disabilities: Systematic review of the international evidence base. Healthcare, 12(13), 1349. (doi: 10.3390/healthcare12131349) (PMID:38998883) (PMCID:PMC11241307)
Brown, M., Linden, M., Marsh, L., Truesdale, M. , Sheerin, F. and McCormick, F. (2024) The experiences of young people with intellectual disability, parents and professionals in relationships and sexuality education programmes: findings from a qualitative study. Healthcare, 12(11), 1105. (doi: 10.3390/healthcare12111105)
Linden, M. A., Leonard, R., Forbes, T., Brown, M., Marsh, L., Todd, S., Hughes, N. and Truesdale, M. (2024) Randomised controlled feasibility study protocol of the Carers-ID online intervention to support the mental health of family carers of people with intellectual disabilities. Pilot and Feasibility Studies, 10(1), 25. (doi: 10.1186/s40814-024-01448-w)
Ward, L.A. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland. medRxiv, (doi: 10.1101/2024.01.18.23300433)
Tawankanjanachot, N., Truesdale, M. , Orachon, P. and Kidd, L. (2024) Social skills interventions for Thai adolescents with Autism Spectrum Disorder (ASD): a qualitative study of the perceptions and experiences of Thai adolescents, their caregivers and healthcare professionals. International Journal of Mental Health Systems, 18, 1. (doi: 10.1186/s13033-023-00617-3)
2023
Linden, M., Leonard, R., Forbes, T., Brown, M., Marsh, L., Todd, S., Hughes, N. and Truesdale, M. (2023) Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic. BMC Public Health, 23(1), 2475. (doi: 10.1186/s12889-023-17432-7) (PMID:38082349) (PMCID:PMC10714525)
Tawankanjanachot, N., Melville, C. , Habib, A., Truesdale, M. and Kidd, L. (2023) Systematic review of the effectiveness and cultural adaptation of social skills interventions for adolescents with autism spectrum disorders in Asia. Research in Autism Spectrum Disorders, 104, 102163. (doi: 10.1016/j.rasd.2023.102163)
O'Leary, L., Maine, A., Ring, N., Reid, J., Speirs, L., Allan, L., Truesdale, M. and Taggart, L. (2023) A scoping review of the evidence for the use of screening tools in people with intellectual disabilities with dysphagia. Journal of Applied Research in Intellectual Disabilities, 36(3), pp. 429-447. (doi: 10.1111/jar.13076) (PMID:36797039)
2022
Linden, M. A., Forbes, T., Brown, M., Marsh, L., Truesdale, M. , McCann, E., Todd, S. and Hughes, N. (2022) Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations. BMC Public Health, 22, 2095. (doi: 10.1186/s12889-022-14560-4) (PMID:36384516) (PMCID:PMC9668390)
Brown, M., MacArthur, J., Truesdale, M. and Higgins, A. (2022) The transition from child to adult health services for young adults with intellectual disabilities: An evaluation of a pilot of an online learning resource for Registered Nurses. Nurse Education in Practice, 64, 103424. (doi: 10.1016/j.nepr.2022.103424) (PMID:35947941)
Hughes-Mccormack, L. et al. (2022) Rates, causes and predictors of all-cause and avoidable mortality in 163,686 children and young people with and without intellectual disabilities: A record linkage national cohort study. BMJ Open, 12, e061636. (doi: 10.1136/bmjopen-2022-061636) (PMID:36113944) (PMCID:PMC9486341)
2021
Truesdale, M. , Taggart, L., Ryan, A. and McConkey, R. (2021) Experiences of reciprocal caring among adults with an intellectual disability caring for an older family member. Journal of Policy and Practice in Intellectual Disabilities, 18(3), pp. 240-248. (doi: 10.1111/jppi.12380)
Truesdale, M. et al. (2021) Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis. BMJ Open, 11(7), e043658. (doi: 10.1136/bmjopen-2020-043658) (PMID:34261677)
Pope, J., Truesdale, M. and Brown, M. (2021) Risk factors for falls among adults with intellectual disabilities: a narrative review. Journal of Applied Research in Intellectual Disabilities, 34(1), pp. 274-285. (doi: 10.1111/jar.12805) (PMID:32945091)
2020
Brown, M., McCann, E., Truesdale, M. , Linden, M. and Marsh, L. (2020) The design, content and delivery of relationship and sexuality education programmes for people with intellectual disabilities: a systematic review of the international evidence. International Journal of Environmental Research and Public Health, 17(20), 7568. (doi: 10.3390/ijerph17207568)
Maine, A., Brown, M., Dickson, A. and Truesdale, M. (2020) The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigor. Journal of Intellectual Disabilities, 24(2), pp. 253-267. (doi: 10.1177/1744629518774172) (PMID:29764275)
Maine, A., Brown, M. and Truesdale, M. (2020) Diabetes and people with learning disabilities: issues for policy, practice, and education. Tizard Learning Disability Review, 25(1), pp. 26-34. (doi: 10.1108/TLDR-05-2019-0020)
2019
Truesdale, M. , Brown, M., Taggart, L., Bradley, A., Paterson, D., Sirisena, C., Walley, R. and Karatzias, T. (2019) Trauma‐informed care: A qualitative study exploring the views and experiences of professionals in specialist health services for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(6), pp. 1437-1445. (doi: 10.1111/jar.12634) (PMID:31169970)
Maine, A., Brown, M. J., Dickson, A. and Truesdale, M. (2019) Pilot feasibility study of the Walking Away from Diabetes programme for adults with intellectual disabilities in two further education colleges: Process evaluation findings. Journal of Applied Research in Intellectual Disabilities, 32(5), pp. 1034-1046. (doi: 10.1111/jar.12593) (PMID:30941841)
Karatzias, T., Brown, M., Taggart, L., Truesdale, M. , Sirisena, C., Walley, R., Mason‐Roberts, S., Bradley, A. and Paterson, D. (2019) A mixed‐methods, randomized controlled feasibility trial of Eye Movement Desensitization and Reprocessing (EMDR) plus Standard Care (SC) versus SC alone for DSM‐5 Posttraumatic Stress Disorder (PTSD) in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(4), pp. 806-818. (doi: 10.1111/jar.12570) (PMID:30714684)
Maine, A., Brown, M. J., Dickson, A. and Truesdale, M. (2019) An evaluation of mainstream type 2 diabetes educational programmes in relation to the needs of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities, 32(2), pp. 256-279. (doi: 10.1111/jar.12544) (PMID:30457200)
2018
Taggart, L., Truesdale, M. , Dunkley, A., House, A. and Russell, A. M. (2018) Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes. Current Developmental Disorders Reports, 5(3), pp. 132-142. (doi: 10.1007/s40474-018-0142-5) (PMID:30148038) (PMCID:PMC6096852)
Mason-Roberts, S., Bradley, A., Karatzias, T., Brown, M., Paterson, D., Walley, R., Truesdale, M. , Taggart, L. and Sirisena, C. (2018) Multiple traumatisation and subsequent psychopathology in people with intellectual disabilities and DSM-5 PTSD: a preliminary study. Journal of Intellectual Disability Research, 62(8), pp. 730-736. (doi: 10.1111/jir.12505) (PMID:29856097)
2017
Taggart, L. et al. (2017) Pilot feasibility study examining a structured self-management diabetes education programme, DESMOND-ID, targeting HbA1c in adults with intellectual disabilities. Diabetic Medicine, 35(1), pp. 137-146. (doi: 10.1111/dme.13539) (PMID:29083501)
Maine, A., Dickson, A., Truesdale, M. and Brown, M. (2017) An application of Bandura's ‘Four Sources of Self-Efficacy’ to the self-management of type 2 diabetes in people with intellectual disability: An inductive and deductive thematic analysis. Research in Developmental Disabilities, 70, pp. 75-84. (doi: 10.1016/j.ridd.2017.09.004) (PMID:28918307)
Brown, M., Taggart, L., Karatzias, T., Truesdale, M. , Walley, R., Northway, R., Macrae, S., Carey, M. and Davies, M. (2017) Improving diabetes care for people with intellectual disabilities: a qualitative study exploring the perceptions and experiences of professionals in diabetes and intellectual disability services. Journal of Intellectual Disability Research, 61(5), pp. 435-449. (doi: 10.1111/jir.12369) (PMID:28247543)
2015
MacRae, S., Brown, M., Karatzias, T., Taggart, L., Truesdale-Kennedy, M. , Walley, R., Sierka, A., Northway, R., Carey, M. and Davies, M. (2015) Diabetes in people with intellectual disabilities: A systematic review of the literature. Research in Developmental Disabilities, 47, pp. 352-374. (doi: 10.1016/j.ridd.2015.10.003) (PMID:26496008)
Taggart, L. et al. (2015) A study protocol for a pilot randomised trial of a structured education programme for the self-management of Type 2 diabetes for adults with intellectual disabilities. Trials, 16, 148. (doi: 10.1186/s13063-015-0644-y) (PMID:25872928) (PMCID:PMC4404014)
Scott, J., Truesdale-Kennedy, M. and Taggart, L. (2015) Working with people with people with intellectual and developmental disabilities who have diabetes. Journal of Diabetes Nursing, 19(5), pp. 190-194.
2014
Ryan, A., Taggart, L., Truesdale-Kennedy, M. and Slevin, E. (2014) Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary. International Journal of Older People Nursing, 9(3), pp. 217-226. (doi: 10.1111/opn.12021) (PMID:23497304)
Slevin, E., Truesdale-Kennedy, M. , McConkey, R., Livingstone, B. and Fleming, P. (2014) Obesity and overweight in intellectual and non-intellectually disabled children. Journal of Intellectual Disability Research, 58(3), pp. 211-220. (doi: 10.1111/j.1365-2788.2012.01615.x) (PMID:22957929)
2013
Taggart, L., Coates, V. and Truesdale-Kennedy, M. (2013) Management and quality indicators of diabetes mellitus in people with intellectual disabilities. Journal of Intellectual Disability Research, 57(12), pp. 1152-1163. (doi: 10.1111/j.1365-2788.2012.01633.x) (PMID:23106688)
2012
Taggart, L., Truesdale-Kennedy, M. , Ryan, A. and McConkey, R. (2012) Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability. Journal of Intellectual Disabilities, 16(3), pp. 217-234. (doi: 10.1177/1744629512456465) (PMID:22890999)
2011
Truesdale-Kennedy, M. , Taggart, L. and McIlfatrick, S. (2011) Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography. Journal of Advanced Nursing, 67(6), pp. 1294-1304. (doi: 10.1111/j.1365-2648.2010.05595.x) (PMID:21366669)
McIlfatrick, S., Taggart, L. and Truesdale-Kennedy, M. (2011) Supporting women with intellectual disabilities to access breast cancer screening: a healthcare professional perspective. European Journal of Cancer Care, 20(3), pp. 412-420. (doi: 10.1111/j.1365-2354.2010.01221.x) (PMID:20825462)
2010
Taggart, L., Truesdale-Kennedy, M. and McIlfatrick, S. (2010) The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services. Journal of Intellectual Disability Research, 55(1), pp. 41-52. (doi: 10.1111/j.1365-2788.2010.01345.x) (PMID:21121993)
McConkey, R., Truesdale, M. , Crawford, H., McGreevy, E., Reavey, M. and Cassidy, A. (2010) Preschoolers with autism spectrum disorders: evaluating the impact of a home‐based intervention to promote their communication. Early Child Development and Care, 180(3), pp. 299-315. (doi: 10.1080/03004430801899187)
2009
McConkey, R., Truesdale-Kennedy, M. and Cassidy, A. (2009) Mothers’ recollections of early features of autism spectrum disorders. Child and Adolescent Mental Health, 14(1), pp. 31-36. (doi: 10.1111/j.1475-3588.2008.00495.x)
2008
Slevin, E., McConkey, R., Truesdale-Kennedy, M. and Taggart, L. (2008) People with learning disabilities admitted to an assessment and treatment unit: impact on challenging behaviours and mental health problems. Journal of Psychiatric and Mental Health Nursing, 15(7), pp. 537-546. (doi: 10.1111/j.1365-2850.2008.01262.x) (PMID:18768005)
Slevin, E., Truesdale-Kennedy, M. , McConkey, R., Barr, O. and Taggart, L. (2008) Community learning disability teams: developments, composition and good practice. Journal of Intellectual Disabilities, 12(1), pp. 59-79. (doi: 10.1177/1744629507083583) (PMID:18337302)
McConkey, R., Truesdale-Kennedy, M. , Chang, M.-Y., Jarrah, S. and Shukri, R. (2008) The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. International Journal of Nursing Studies, 45(1), pp. 65-74. (doi: 10.1016/j.ijnurstu.2006.08.007) (PMID:17022985)
Cassidy, A., McConkey, R., Truesdale-Kennedy, M. and Slevin, E. (2008) Preschoolers with autism spectrum disorders: the impact on families and the supports available to them. Early Child Development and Care, 178(2), pp. 115-128. (doi: 10.1080/03004430701491721)
2007
Slevin, E., McConkey, R., Truesdale-Kennedy, M. , Barr, O. and Taggart, L. (2007) Community learning disability teams: Perceived effectiveness, multidisciplinary working and service user satisfaction. Journal of Intellectual Disabilities, 11(4), pp. 329-342. (doi: 10.1177/1744629507085271) (PMID:18029410)
2006
Truesdale-Kennedy, M. , McConkey, R., Ferguson, P. and Roberts, P. (2006) An evaluation of a family-centred support service for children with a significant learning disability. Child Care in Practice, 12(4), pp. 377-390. (doi: 10.1080/13575270600863291)
2004
Mcconkey, R., Truesdale, M. and Conliffe, C. (2004) The features of short-break residential services valued by families who have children with multiple disabilities. Journal of Social Work, 4(1), pp. 61-75. (doi: 10.1177/1468017304042421)
2001
Truesdale, M. and McConkey, R. (2001) Parental health and stress in families with a child who has multiple disabilities. Child Care in Practice, 7(2), pp. 141-152. (doi: 10.1080/13575270108415317)
2000
McConkey, R. and Truesdale, M. (2000) Reactions of nurses and therapists in mainstream health services to contact with people who have learning disabilities. Journal of Advanced Nursing, 32(1), pp. 158-163. (doi: 10.1046/j.1365-2648.2000.01413.x) (PMID:10886447)
Articles
Tawankanjanachot, N., Melville, C. , Truesdale, M. and Kidd, L. (2024) An online survey of perspectives towards the impact of the covid-19 pandemic amongst caregivers of adolescents with ASD. BMC Nursing, 23(1), 830. (doi: 10.1186/s12912-024-02492-w) (PMID:39543635)
Linden, M., Truesdale, M. , Leonard, R. A., Brown, M., Marsh, L., Todd, S., Hughes, N. and Forbes, T. (2024) Acceptability testing of the Carers-ID intervention to support the mental health of family carers of people with profound and multiple intellectual disabilities. PLoS ONE, 19(10), e0313081. (doi: 10.1371/journal.pone.0313081) (PMID:39480903)
Brown, M., Linden, M., Marsh, L., Truesdale, M. , Sheerin, F. and McCormick, F. (2024) Learning for life, friendships and relationships from the perspective of children and young people with intellectual disabilities: findings from a UK wide qualitative study. BMC Public Health, 24(1), 2491. (doi: 10.1186/s12889-024-19972-y) (PMID:39267029)
Ward, L. M. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland: a retrospective cohort study with record linkage. BMJ Open, 14(8), e084421. (doi: 10.1136/bmjopen-2024-084421) (PMID:39142671) (PMCID:PMC11331995)
Leonard, R., Hughes, N., Forbes, T., Brown, M., Marsh, L., Truesdale, M. , Todd, S. and Linden, M. (2024) Effectiveness of online programmes for family carers of people with intellectual disabilities: Systematic review of the international evidence base. Healthcare, 12(13), 1349. (doi: 10.3390/healthcare12131349) (PMID:38998883) (PMCID:PMC11241307)
Brown, M., Linden, M., Marsh, L., Truesdale, M. , Sheerin, F. and McCormick, F. (2024) The experiences of young people with intellectual disability, parents and professionals in relationships and sexuality education programmes: findings from a qualitative study. Healthcare, 12(11), 1105. (doi: 10.3390/healthcare12111105)
Linden, M. A., Leonard, R., Forbes, T., Brown, M., Marsh, L., Todd, S., Hughes, N. and Truesdale, M. (2024) Randomised controlled feasibility study protocol of the Carers-ID online intervention to support the mental health of family carers of people with intellectual disabilities. Pilot and Feasibility Studies, 10(1), 25. (doi: 10.1186/s40814-024-01448-w)
Ward, L.A. et al. (2024) Population-based cancer incidence and mortality rates and ratios among adults with intellectual disabilities in Scotland. medRxiv, (doi: 10.1101/2024.01.18.23300433)
Tawankanjanachot, N., Truesdale, M. , Orachon, P. and Kidd, L. (2024) Social skills interventions for Thai adolescents with Autism Spectrum Disorder (ASD): a qualitative study of the perceptions and experiences of Thai adolescents, their caregivers and healthcare professionals. International Journal of Mental Health Systems, 18, 1. (doi: 10.1186/s13033-023-00617-3)
Linden, M., Leonard, R., Forbes, T., Brown, M., Marsh, L., Todd, S., Hughes, N. and Truesdale, M. (2023) Experiences of UK and Irish family carers of people with profound and multiple intellectual disabilities during the COVID-19 pandemic. BMC Public Health, 23(1), 2475. (doi: 10.1186/s12889-023-17432-7) (PMID:38082349) (PMCID:PMC10714525)
Tawankanjanachot, N., Melville, C. , Habib, A., Truesdale, M. and Kidd, L. (2023) Systematic review of the effectiveness and cultural adaptation of social skills interventions for adolescents with autism spectrum disorders in Asia. Research in Autism Spectrum Disorders, 104, 102163. (doi: 10.1016/j.rasd.2023.102163)
O'Leary, L., Maine, A., Ring, N., Reid, J., Speirs, L., Allan, L., Truesdale, M. and Taggart, L. (2023) A scoping review of the evidence for the use of screening tools in people with intellectual disabilities with dysphagia. Journal of Applied Research in Intellectual Disabilities, 36(3), pp. 429-447. (doi: 10.1111/jar.13076) (PMID:36797039)
Linden, M. A., Forbes, T., Brown, M., Marsh, L., Truesdale, M. , McCann, E., Todd, S. and Hughes, N. (2022) Impact of the COVID-19 pandemic on family carers of those with profound and multiple intellectual disabilities: perspectives from UK and Irish Non-Governmental Organisations. BMC Public Health, 22, 2095. (doi: 10.1186/s12889-022-14560-4) (PMID:36384516) (PMCID:PMC9668390)
Brown, M., MacArthur, J., Truesdale, M. and Higgins, A. (2022) The transition from child to adult health services for young adults with intellectual disabilities: An evaluation of a pilot of an online learning resource for Registered Nurses. Nurse Education in Practice, 64, 103424. (doi: 10.1016/j.nepr.2022.103424) (PMID:35947941)
Hughes-Mccormack, L. et al. (2022) Rates, causes and predictors of all-cause and avoidable mortality in 163,686 children and young people with and without intellectual disabilities: A record linkage national cohort study. BMJ Open, 12, e061636. (doi: 10.1136/bmjopen-2022-061636) (PMID:36113944) (PMCID:PMC9486341)
Truesdale, M. , Taggart, L., Ryan, A. and McConkey, R. (2021) Experiences of reciprocal caring among adults with an intellectual disability caring for an older family member. Journal of Policy and Practice in Intellectual Disabilities, 18(3), pp. 240-248. (doi: 10.1111/jppi.12380)
Truesdale, M. et al. (2021) Respiratory-associated deaths in people with intellectual disabilities: a systematic review and meta-analysis. BMJ Open, 11(7), e043658. (doi: 10.1136/bmjopen-2020-043658) (PMID:34261677)
Pope, J., Truesdale, M. and Brown, M. (2021) Risk factors for falls among adults with intellectual disabilities: a narrative review. Journal of Applied Research in Intellectual Disabilities, 34(1), pp. 274-285. (doi: 10.1111/jar.12805) (PMID:32945091)
Brown, M., McCann, E., Truesdale, M. , Linden, M. and Marsh, L. (2020) The design, content and delivery of relationship and sexuality education programmes for people with intellectual disabilities: a systematic review of the international evidence. International Journal of Environmental Research and Public Health, 17(20), 7568. (doi: 10.3390/ijerph17207568)
Maine, A., Brown, M., Dickson, A. and Truesdale, M. (2020) The experience of type 2 diabetes self-management in adults with intellectual disabilities and their caregivers: A review of the literature using meta-aggregative synthesis and an appraisal of rigor. Journal of Intellectual Disabilities, 24(2), pp. 253-267. (doi: 10.1177/1744629518774172) (PMID:29764275)
Maine, A., Brown, M. and Truesdale, M. (2020) Diabetes and people with learning disabilities: issues for policy, practice, and education. Tizard Learning Disability Review, 25(1), pp. 26-34. (doi: 10.1108/TLDR-05-2019-0020)
Truesdale, M. , Brown, M., Taggart, L., Bradley, A., Paterson, D., Sirisena, C., Walley, R. and Karatzias, T. (2019) Trauma‐informed care: A qualitative study exploring the views and experiences of professionals in specialist health services for adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(6), pp. 1437-1445. (doi: 10.1111/jar.12634) (PMID:31169970)
Maine, A., Brown, M. J., Dickson, A. and Truesdale, M. (2019) Pilot feasibility study of the Walking Away from Diabetes programme for adults with intellectual disabilities in two further education colleges: Process evaluation findings. Journal of Applied Research in Intellectual Disabilities, 32(5), pp. 1034-1046. (doi: 10.1111/jar.12593) (PMID:30941841)
Karatzias, T., Brown, M., Taggart, L., Truesdale, M. , Sirisena, C., Walley, R., Mason‐Roberts, S., Bradley, A. and Paterson, D. (2019) A mixed‐methods, randomized controlled feasibility trial of Eye Movement Desensitization and Reprocessing (EMDR) plus Standard Care (SC) versus SC alone for DSM‐5 Posttraumatic Stress Disorder (PTSD) in adults with intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 32(4), pp. 806-818. (doi: 10.1111/jar.12570) (PMID:30714684)
Maine, A., Brown, M. J., Dickson, A. and Truesdale, M. (2019) An evaluation of mainstream type 2 diabetes educational programmes in relation to the needs of people with intellectual disabilities: A systematic review of the literature. Journal of Applied Research in Intellectual Disabilities, 32(2), pp. 256-279. (doi: 10.1111/jar.12544) (PMID:30457200)
Taggart, L., Truesdale, M. , Dunkley, A., House, A. and Russell, A. M. (2018) Health Promotion and Wellness Initiatives Targeting Chronic Disease Prevention and Management for Adults with Intellectual and Developmental Disabilities: Recent Advancements in Type 2 Diabetes. Current Developmental Disorders Reports, 5(3), pp. 132-142. (doi: 10.1007/s40474-018-0142-5) (PMID:30148038) (PMCID:PMC6096852)
Mason-Roberts, S., Bradley, A., Karatzias, T., Brown, M., Paterson, D., Walley, R., Truesdale, M. , Taggart, L. and Sirisena, C. (2018) Multiple traumatisation and subsequent psychopathology in people with intellectual disabilities and DSM-5 PTSD: a preliminary study. Journal of Intellectual Disability Research, 62(8), pp. 730-736. (doi: 10.1111/jir.12505) (PMID:29856097)
Taggart, L. et al. (2017) Pilot feasibility study examining a structured self-management diabetes education programme, DESMOND-ID, targeting HbA1c in adults with intellectual disabilities. Diabetic Medicine, 35(1), pp. 137-146. (doi: 10.1111/dme.13539) (PMID:29083501)
Maine, A., Dickson, A., Truesdale, M. and Brown, M. (2017) An application of Bandura's ‘Four Sources of Self-Efficacy’ to the self-management of type 2 diabetes in people with intellectual disability: An inductive and deductive thematic analysis. Research in Developmental Disabilities, 70, pp. 75-84. (doi: 10.1016/j.ridd.2017.09.004) (PMID:28918307)
Brown, M., Taggart, L., Karatzias, T., Truesdale, M. , Walley, R., Northway, R., Macrae, S., Carey, M. and Davies, M. (2017) Improving diabetes care for people with intellectual disabilities: a qualitative study exploring the perceptions and experiences of professionals in diabetes and intellectual disability services. Journal of Intellectual Disability Research, 61(5), pp. 435-449. (doi: 10.1111/jir.12369) (PMID:28247543)
MacRae, S., Brown, M., Karatzias, T., Taggart, L., Truesdale-Kennedy, M. , Walley, R., Sierka, A., Northway, R., Carey, M. and Davies, M. (2015) Diabetes in people with intellectual disabilities: A systematic review of the literature. Research in Developmental Disabilities, 47, pp. 352-374. (doi: 10.1016/j.ridd.2015.10.003) (PMID:26496008)
Taggart, L. et al. (2015) A study protocol for a pilot randomised trial of a structured education programme for the self-management of Type 2 diabetes for adults with intellectual disabilities. Trials, 16, 148. (doi: 10.1186/s13063-015-0644-y) (PMID:25872928) (PMCID:PMC4404014)
Scott, J., Truesdale-Kennedy, M. and Taggart, L. (2015) Working with people with people with intellectual and developmental disabilities who have diabetes. Journal of Diabetes Nursing, 19(5), pp. 190-194.
Ryan, A., Taggart, L., Truesdale-Kennedy, M. and Slevin, E. (2014) Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary. International Journal of Older People Nursing, 9(3), pp. 217-226. (doi: 10.1111/opn.12021) (PMID:23497304)
Slevin, E., Truesdale-Kennedy, M. , McConkey, R., Livingstone, B. and Fleming, P. (2014) Obesity and overweight in intellectual and non-intellectually disabled children. Journal of Intellectual Disability Research, 58(3), pp. 211-220. (doi: 10.1111/j.1365-2788.2012.01615.x) (PMID:22957929)
Taggart, L., Coates, V. and Truesdale-Kennedy, M. (2013) Management and quality indicators of diabetes mellitus in people with intellectual disabilities. Journal of Intellectual Disability Research, 57(12), pp. 1152-1163. (doi: 10.1111/j.1365-2788.2012.01633.x) (PMID:23106688)
Taggart, L., Truesdale-Kennedy, M. , Ryan, A. and McConkey, R. (2012) Examining the support needs of ageing family carers in developing future plans for a relative with an intellectual disability. Journal of Intellectual Disabilities, 16(3), pp. 217-234. (doi: 10.1177/1744629512456465) (PMID:22890999)
Truesdale-Kennedy, M. , Taggart, L. and McIlfatrick, S. (2011) Breast cancer knowledge among women with intellectual disabilities and their experiences of receiving breast mammography. Journal of Advanced Nursing, 67(6), pp. 1294-1304. (doi: 10.1111/j.1365-2648.2010.05595.x) (PMID:21366669)
McIlfatrick, S., Taggart, L. and Truesdale-Kennedy, M. (2011) Supporting women with intellectual disabilities to access breast cancer screening: a healthcare professional perspective. European Journal of Cancer Care, 20(3), pp. 412-420. (doi: 10.1111/j.1365-2354.2010.01221.x) (PMID:20825462)
Taggart, L., Truesdale-Kennedy, M. and McIlfatrick, S. (2010) The role of community nurses and residential staff in supporting women with intellectual disability to access breast screening services. Journal of Intellectual Disability Research, 55(1), pp. 41-52. (doi: 10.1111/j.1365-2788.2010.01345.x) (PMID:21121993)
McConkey, R., Truesdale, M. , Crawford, H., McGreevy, E., Reavey, M. and Cassidy, A. (2010) Preschoolers with autism spectrum disorders: evaluating the impact of a home‐based intervention to promote their communication. Early Child Development and Care, 180(3), pp. 299-315. (doi: 10.1080/03004430801899187)
McConkey, R., Truesdale-Kennedy, M. and Cassidy, A. (2009) Mothers’ recollections of early features of autism spectrum disorders. Child and Adolescent Mental Health, 14(1), pp. 31-36. (doi: 10.1111/j.1475-3588.2008.00495.x)
Slevin, E., McConkey, R., Truesdale-Kennedy, M. and Taggart, L. (2008) People with learning disabilities admitted to an assessment and treatment unit: impact on challenging behaviours and mental health problems. Journal of Psychiatric and Mental Health Nursing, 15(7), pp. 537-546. (doi: 10.1111/j.1365-2850.2008.01262.x) (PMID:18768005)
Slevin, E., Truesdale-Kennedy, M. , McConkey, R., Barr, O. and Taggart, L. (2008) Community learning disability teams: developments, composition and good practice. Journal of Intellectual Disabilities, 12(1), pp. 59-79. (doi: 10.1177/1744629507083583) (PMID:18337302)
McConkey, R., Truesdale-Kennedy, M. , Chang, M.-Y., Jarrah, S. and Shukri, R. (2008) The impact on mothers of bringing up a child with intellectual disabilities: A cross-cultural study. International Journal of Nursing Studies, 45(1), pp. 65-74. (doi: 10.1016/j.ijnurstu.2006.08.007) (PMID:17022985)
Cassidy, A., McConkey, R., Truesdale-Kennedy, M. and Slevin, E. (2008) Preschoolers with autism spectrum disorders: the impact on families and the supports available to them. Early Child Development and Care, 178(2), pp. 115-128. (doi: 10.1080/03004430701491721)
Slevin, E., McConkey, R., Truesdale-Kennedy, M. , Barr, O. and Taggart, L. (2007) Community learning disability teams: Perceived effectiveness, multidisciplinary working and service user satisfaction. Journal of Intellectual Disabilities, 11(4), pp. 329-342. (doi: 10.1177/1744629507085271) (PMID:18029410)
Truesdale-Kennedy, M. , McConkey, R., Ferguson, P. and Roberts, P. (2006) An evaluation of a family-centred support service for children with a significant learning disability. Child Care in Practice, 12(4), pp. 377-390. (doi: 10.1080/13575270600863291)
Mcconkey, R., Truesdale, M. and Conliffe, C. (2004) The features of short-break residential services valued by families who have children with multiple disabilities. Journal of Social Work, 4(1), pp. 61-75. (doi: 10.1177/1468017304042421)
Truesdale, M. and McConkey, R. (2001) Parental health and stress in families with a child who has multiple disabilities. Child Care in Practice, 7(2), pp. 141-152. (doi: 10.1080/13575270108415317)
McConkey, R. and Truesdale, M. (2000) Reactions of nurses and therapists in mainstream health services to contact with people who have learning disabilities. Journal of Advanced Nursing, 32(1), pp. 158-163. (doi: 10.1046/j.1365-2648.2000.01413.x) (PMID:10886447)
Grants
Grants and Awards listed are those received whilst working with the University of Glasgow.
- Relationships and Sexuality in Intellectual Disability Education
Medical Research Council
2023 - 2024
- Randomised controlled feasibility study and exploratory trial of the Carers-ID intervention: Supporting family carers' mental health following the COVID-19 pandemic
Baily Thomas Charitable Fund
2023 - 2024
- Examining potential factors underlying the increased risk of severe COVID-19 experienced by people with intellectual and developmental disabilities.
Baily Thomas Charitable Fund
2022 - 2023
- Healthcare matters: capturing the complexity of Primary Health Care for people with intellectual disabilities through record linkage and the Delphi method.
Baily Thomas Charitable Fund
2022 - 2023
- The clinical and cost effectiveness of the DESMOND-ID education programme for adults with intellectual disability and type 2 diabetes
National Institute for Health Research
2022 - 2025
- Impact of Covid-19 on families with disabilities and identification of mechanisms of support.
UK Research and Innovation
2021 - 2022
- Development of Best Practice Guidelines on relationships and sexual education for learning disability nurses, school nurses, child health nurses and sexual health nurses to meet the needs to children and young people with learning disabilities
Burdett Trust for Nursing
2020 - 2021
Supervision
Student name: Wattana Tejakum
Thesis title: Resilience among parents of children with intellectual disabilities in Thailand.
Student name: Nadlada Tawankanjanachot
Thesis title: Social skills interventions for adolescents with Autism Spectrum Disorder (ASD) in Thailand.
Student name: Jingyuan Sun
Thesis title: The effectiveness of physical intervention in promoting disabled children's mental health and wellbeing.